PRESS-NEWS.org - Press Release Distribution
PRESS RELEASES DISTRIBUTION

New in the Hastings Center Report: Disclosing misattributed parentage, treating terrorists, informed consent in the era of personalized medicine, and more in the July-August 2015 issue

2015-07-16
(Press-News.org) When Should Genome Researchers Disclose Misattributed Parentage?
Amulya Mandava, Joseph Millum, and Benjamin E. Berkman

As genome sequencing improves, researchers will increasingly use it on parents and their children when the children have rare or undiagnosed diseases that might be genetic. However, researchers are sure to discover that, in a growing number of cases, the assumed biological relationships between the individuals do not exist. Consequently, the researchers will have to decide whether to disclose incidental findings of misattributed parentage on a much larger scale than ever before. After evaluating the likely benefits and harms of revealing this information to parents, the authors conclude that nondisclosure should be the default position for researchers. Amulya Mandava is a masters of arts candidate at Harvard Divinity School; Joseph Millum holds a joint faculty appointment with the Clinical Center Department of Bioethics and the Fogarty International Center at the National Institutes of Health; and Benjamin E. Berkman holds a joint appointment in the National Institutes of Health Department of Bioethics and in the National Human Genome Research Institute. A related article, Beyond Harms and Benefits: Rethinking Duties to Disclose Misattributed Parentage, argues that when deciding whether to disclose incidental findings that relate fundamentally to participants' sense of self and personal identity, researchers need to factor in the values of justice and autonomy. The author is Jeremy R. Garrett, a research associate in bioethics at the Children's Mercy Bioethics Center at Children's Mercy Hospital in Kansas City, Mo.

Punishing Health Care Providers for Treating Terrorists
Leonard S. Rubenstein

Imagine that an American physician volunteered to treat wounded children through the Ministry of Health in Gaza, controlled by Hamas. Or that a Palestinian nurse attending to injured fighters in Gaza spoke out against the firing of rockets into Israel, was threatened with arrest, and sought asylum in the United States. Under U.S. law, the doctor could be subject to prosecution, and the nurse could be denied asylum. The question of whether a terrorist is entitled to medical care, though largely theoretical, has generated considerable discussion, with near unanimity that there is no moral basis to refuse to treat, writes Leonard S. Rubenstein, director of the Program on Human Rights, Health and Conflicts at the Center for Public Health and Human Rights at the Johns Hopkins Bloomberg School of Public Health and a core faculty member of the Johns Hopkins Berman Institute of Bioethics. But whether a health professional can be punished for providing medical care either to terrorists or under the auspices of a terrorist organization has received little attention from either a moral or legal perspective, although such situations arise throughout the world.

Drifting Away from Informed Consent in the Era of Personalized Medicine
Erik Parens

As the price of genome sequencing falls, the prospect of tailoring medical care to an individual's genome becomes closer to reality. But in our excitement about the technological capacity to gather genomic data at an ever-lower cost, we are drifting away from what has long been a basic ethical commitment: enabling people to provide informed consent before anyone accesses their genetic information. In our pursuit of personalized, or precision, medicine, we must take care not to abandon respect for persons, writes Erik Parens, a senior research scholar at The Hastings Center.

Also in this issue:

Policy & Politics: Candor about Adverse Events: Physicians versus the Data Bank
Haavi Morreim

Many major medical institutions have embraced the idea that it is best to be honest with patients and families when an error causes harm that could have been avoided. This kind of disclosure improves patient safety and quality of care; enhances satisfaction for patients, families, and providers; and reduces malpractice litigation costs. A few states have also embraced this approach, sometimes known as "Candor" (for "communication and optimal resolution"). Yet all of these efforts face a major challenge. Although many physicians would like to achieve insight, reconciliation, and quality improvement in just this way, many fear that money paid to resolve an incident in which they were involved can result in a lifelong black mark in the National Practitioner Data Bank.

INFORMATION:



ELSE PRESS RELEASES FROM THIS DATE:

Women and fragrances: Scents and sensitivity

2015-07-16
Researchers have sniffed out an unspoken rule among women when it comes to fragrances: Women don't buy perfume for other women, and they certainly don't share them. Like boyfriends, current fragrance choices are hands off, forbidden--neither touch, nor smell. You can look, but that's all, says BYU industrial design professor and study coauthor Bryan Howell. "Women treasure fragrances as a vital pillar of their personal identity," said Howell, who caught wind of the finding while researching fragrance-packaging preferences. "They may use the same fragrance for many years, ...

NASA sees Typhoon Nangka knocking on Japan's door

NASA sees Typhoon Nangka knocking on Japans door
2015-07-16
Typhoon Nangka was knocking on Japan's door when NASA's Aqua satellite passed overhead early on July 16. Satellite imagery showed that Nangka's northern quadrant began spreading over southeastern Japan. The GPM core satellite spotted towering thunderstorms in Nangka's western side. NASA/JAXA's Global Precipitation Measurement (GPM) core observatory satellite passed above Typhoon Nangka on July 15, 2015 at 1621 UTC (12:21 p.m. EDT) as the weakening typhoon approached the Japanese island of Shikoku. GPM's Dual-Frequency Precipitation Radar (DPR) instrument revealed that ...

Innovative P.E. curriculum triples the rate at which students pass a state physical fitness test

2015-07-16
A physical education program that brings commercial-grade fitness equipment to under-resourced schools, along with a curriculum based on boosting confidence and making participation more enjoyable, dramatically increases students' performance on California's standardized physical fitness test, a UCLA study has found. Publishing in the July issue of the Journal of Education and Training Studies, Anastasia Loukaitou-Sideris, a professor of urban planning and associate dean in the UCLA Luskin School of Public Affairs, reported that the UCLA Health Sound Body Sound Mind curriculum ...

Trapped light orbits within an intriguing material

Trapped light orbits within an intriguing material
2015-07-16
Light becomes trapped as it orbits within tiny granules of a crystalline material that has increasingly intrigued physicists, a team led by University of California, San Diego, physics professor Michael Fogler has found. Hexagonal boron nitride, stacked layers of boron and nitrogen atoms arranged in a hexagonal lattice, has recently been found to bend electromagnetic energy in unusual and potentially useful ways. Last year Fogler and colleagues demonstrated that light could be stored within nanoscale granules of hexagonal boron nitride. Now Fogler's research group ...

Healthcare workers are not removing protective garments correctly

2015-07-16
Washington, DC, July 16, 2015 - Fewer than one in six (4/30) healthcare workers (HCW) followed all CDC recommendations for the removal of personal protective equipment (PPE) after patient care, according to a brief report published in the July issue of the American Journal of Infection Control, the official publication of the Association for Professionals in Infection Control and Epidemiology (APIC). In this study undertaken by researchers from the University of Wisconsin, a trained observer watched healthcare personnel entering and exiting patient rooms specified as ...

Lower risk treatment for blood clots 'empowers' patients, improves care

2015-07-16
INDIANAPOLIS -- Potentially fatal blood clots account for thousands of emergency room visits each year and often those patients are admitted to the hospital, treated with an injectable anticoagulant and monitored for a few days. In companion studies published July 15 in Academic Emergency Medicine, an alternative approach was found to be more effective, less costly and allowed patients to go home the same day. Researchers at the Indiana University School of Medicine treated 106 low-risk patients diagnosed with deep vein thrombosis or pulmonary embolism at two metropolitan ...

Story tips from the Department of Energy's Oak Ridge National Laboratory, July 2015

2015-07-16
To arrange for an interview with a researcher, please contact the Communications staff member identified at the end of each tip. For more information on ORNL and its research and development activities, please refer to one of our media contacts. If you have a general media-related question or comment, you can send it to news@ornl.gov. ENERGY - Samsung savings ... Although variable refrigerant flow heat pumps are known to have advantages, higher initial costs and difficulty in quantifying those benefits serve as deterrents to their widespread use. ORNL's flexible research ...

WHO says the international community must do more to take action against rabies

2015-07-16
A new report from the World Health Organisation urges the global community to accelerate action against rabies and other neglected zoonotic diseases. The WHO report - 'The Control of Neglected Zoonotic Diseases: from advocacy to action' - says rabies can be eliminated through existing knowledge and tools. It urges accelerated action by the global community. The study says that achieving a world free from dog-mediated human rabies in just 15 years is possible because of existing management tools - but only if there is increased investment. The Global Alliance for ...

Firearm shooting errors could be reduced through cognitive training

2015-07-16
Shooting a firearm requires coordinating many actions that depend upon core cognitive abilities, including the critical ability to stop just before pulling the trigger. People who have difficulty inhibiting responses are more likely to shoot unarmed civilians in simulated scenarios, but response inhibition training can help to reduce these shooting errors, according to new research published in Psychological Science, a journal of the Association for Psychological Science. "Our findings indicate that shooting abilities can be predicted, in part, by cognitive abilities, ...

Study: Virtual research studies feasible

2015-07-16
A new pilot study in Parkinson's disease suggests a new era of clinical research which removes the barrier of distance for both scientists and volunteers. The research, which appears in the journal Digital Health, could also enable researchers to leverage the rapid growth in personal genetic testing to better diagnose, and potentially treat, a wide range of diseases. "These findings demonstrate that remote recruitment and conduct of research visits is feasible and well-received by participants," said Ray Dorsey, M.D., M.B.A., a neurologist at the University of Rochester ...

LAST 30 PRESS RELEASES:

Scientists date the origin of Jupiter by studying the formation of “molten rock raindrops”

Chemists develop molecule for important step toward artificial photosynthesis

Dynamic duo: a powerful pair of tools to learn about cells

Scientists discover new '3D genome organizer' linked to fertility and cancer

Mediterranean diet may offset genetic risk of Alzheimer's

New study reveals the role of subtle changes of Northern Westerlies in the East Asian monsoon variability

Are patients with advanced cancer receiving treatment aligned with their goals?

Genetic testing of IVF embryos helps women over 35 conceive faster

Survey: People not aware knee, groin pain can be signs of hip problems

New guideline offers menu of options to help people quit smoking tobacco

"Turning spin loss into energy", developing a key technology for ultra-low power next-generation information devices

Evidence, not ideology, must guide preventive health care

Kids in disadvantaged zip codes face up to 20 times higher odds of gun injuries

Gun injury odds up to 20x higher for kids in disadvantaged ZIP codes

Younger men have higher risk for mortality and cardiovascular disease for type 2 diabetes than type 1 diabetes; whereas for women type 1 diabetes outcomes are worse at all ages

Freeze-framing the cellular world to capture a fleeting moment of cellular activity

Computer hardware advance solves complex optimization problems

SOX2: a key player in prostate cancer progression and treatment resistance

Unlocking the potential of the non-coding genome for precision medicine

Chitinase-3-like protein 1: a novel biomarker for liver disease diagnosis and management

The Journal of Nuclear Medicine Ahead-of-Print Tip Sheet: August 22, 2025

Charisma Virtual Social Coaching named a finalist for Global Innovation Award

From the atmosphere to the abyss: Iron's role in Earth's climate history

US oil and gas air pollution causes unequal health impacts

Scientists reveal how microbes collaborate to consume potent greenhouse gas

UMass Amherst kinesiologist receives $2 million ‘outstanding researcher’ award from NIH

Wildfire peer review report for land Brandenburg, Germany, is now online

Wired by nature: Precision molecules for tomorrow's electronics

New study finds hidden body fat is linked to faster heart ageing

How a gift card could help speed up Alzheimer’s clinical research

[Press-News.org] New in the Hastings Center Report: Disclosing misattributed parentage, treating terrorists, informed consent in the era of personalized medicine, and more in the July-August 2015 issue