Rising T1DE alliance adds Lurie Children’s to further disseminate new data-driven care model for type 1 diabetes

(Press-News.org) The Rising T1DE Alliance (Rising T1DE), a national collaborative spearheading innovation in type 1 diabetes care, is transforming how healthcare systems leverage data, technology, and collaboration to drive improved patient outcomes. Launched in 2020 through grant supports from The Leona M. and Harry B. Helmsley Charitable Trust, Rising T1DE’s work is helping shape a future where proactive, integrated, real-time diabetes management becomes the new standard of care. A recent $5.1 million grant from the Helmsley Charitable Trust to Ann & Robert H. Lurie Children’s Hospital of Chicago adds Lurie Children’s to Rising T1DE’s leadership to focus on actively disseminating scalable, sustainable solutions across the broader diabetes care ecosystem.

Initiated in 2016 at Children’s Mercy Kansas City, Rising T1DE was born from a bold vision: to use real-time, integrated data to guide clinical decision-making and prevent adverse outcomes. At the heart of Rising T1DE’s work is the Diabetes Data Dock (D-Data Dock)— a cloud-based population health management software that integrates data from the electronic health record (EHR), self-management devices, patient reported outcome surveys, and other sources. D-Data Dock helps clinical teams proactively identify and engage high-risk patients, enabling earlier, targeted interventions while reducing friction for research. By aligning data from various sources and improving its consistency and quality, research can more effectively support ongoing efforts and expand its reach.

“The Rising T1DE Alliance is about building a proactive, learning-based care model where data integration, clinical insight, and continuous innovation come together to improve outcomes for people with diabetes,” said Mark Clements, MD, PhD, Rising T1DE Co-Chair and Medical Director of Innovation at Children’s Mercy.

In 2024, Rising T1DE launched its next phase, focused on scaling adoption and refining implementation of the D-Data Dock across new health systems. This effort aims to build the frameworks, technical guidance, and operational playbooks necessary for widespread uptake of data-driven, patient-centered diabetes care. The team works closely with implementation sites like Lurie Children’s, University of Cincinnati, and University of Kansas to test and refine rollout models.

“Integrating technology into clinical workflows is only part of the equation. More value comes from building a learning ecosystem where insights are shared, interventions are tested in real-time, and scalable models emerge,” said Juan Espinoza, MD, a pediatrician, Rising T1DE Co-Chair, and Chief Research Informatics Officer at Stanley Manne Children’s Research Institute at Lurie Children’s.

The Rising T1DE Alliance’s current initiative includes:

Integrating continuous glucose monitoring data into electronic health record systems using standards from the Integration of Continuous Glucose Monitor Data into the Electronic Health Record Project, a consortium organized by the Diabetes Technology Society. Scaling deployment of the D-Data Dock in a cost-effective, replicable manner. Supporting other organizations through toolkits and a growing intervention library. Advancing predictive models to better forecast health risks. Building a national community of diabetes care innovators and implementers. Oversight and guidance are provided by the Community Stakeholder Advisory Board, chaired by Sanjeev Mehta, MD, MPH, Chief Medical Officer and Chief Medical Information Officer at Joslin Diabetes Center, with representatives from the Helmsley Charitable Trust, T1D Exchange, National Committee for Quality Assurance, and multiple clinical institutions. Rising T1DE continues to grow into a dynamic partnership of leading healthcare institutions, technology experts, and patient advocates.

With a strong foundation and new support, the Rising T1DE Alliance is set to empower healthcare systems across the country to deliver high-quality, data-driven care that every person with diabetes deserves.

About the Rising T1DE Alliance
The Rising T1DE Alliance is a grant-funded, multi-institution collaboration committed to revolutionizing type 1 diabetes care through data-driven, patient-centered, scalable innovation. Co-led by Children’s Mercy Kansas City and Ann & Robert H. Lurie Children’s Hospital of Chicago, Rising T1DE brings together clinicians, data scientists, implementation leaders, patient advocates, and industry experts to develop, test, and disseminate cutting-edge tools and models for diabetes population health.

About Ann & Robert H. Lurie Children’s Hospital of Chicago

Ann & Robert H. Lurie Children’s Hospital of Chicago is a nonprofit organization committed to providing access to exceptional care for every child. It is the only independent, research-driven children’s hospital in Illinois and one of less than 35 nationally. This is where the top doctors go to train, practice pediatric medicine, teach, advocate, research and stay up to date on the latest treatments. Exclusively focused on children, all Lurie Children’s resources are devoted to serving their needs. Research at Lurie Children’s is conducted through Stanley Manne Children’s Research Institute, which is focused on improving child health, transforming pediatric medicine and ensuring healthier futures through the relentless pursuit of knowledge. Lurie Children’s is the pediatric training ground for Northwestern University Feinberg School of Medicine. It is ranked as one of the nation’s top children’s hospitals by U.S. News & World Report.

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