Encouraging cooperation in inflammatory arthritis

Inspiration and dialogue on cross-sectoral management

2024-06-14

(Press-News.org) Inflammatory arthritis describes a group of diseases caused by an overactive immune system. The different types of inflammatory arthritis include rheumatoid arthritis, psoriatic arthritis, juvenile idiopathic arthritis, and ankylosing spondylitis. The most common symptoms are joint pain and stiffness. Pain is the predominant symptom in the majority of people with inflammatory arthritis, which contributes to the global burden of rheumatic and musculoskeletal conditions.1 Knowledgeable support can reduce pain, increase functioning and well-being, and reduce individual and societal costs.1

Co-creation is a collaborative development strategy where stakeholders from different backgrounds or sectors work together to jointly produce a mutually valued outcome. Cross-sectoral cooperation in healthcare systems involves collaboration among various sectors – public, private, and non-profit – to address health-related issues in a comprehensive and effective manner. Cross-sectoral cooperation is vital in the management of people living with inflammatory arthritis because it enables integrated care approaches that enhance patient outcomes by combining expertise from various healthcare and support services. Cross-sectoral cooperation can lead to innovative treatments and more coherent and coordinated patient pathways, ultimately improving quality of life for patients with this chronic condition.

To explore and facilitate cross sectoral collaboration, a 1-day seminar was held to bring together a group of 53 stakeholders with different backgrounds and interests, including multidisciplinary healthcare professionals and general practitioners, municipal representatives, politicians, public leaders, and patient research partners. The aim was to inspire dialogue on how management across these different sectors can improve and develop healthcare for people with an inflammatory arthritis. The meeting delivered state-of-the art updates about the latest research on co-creation, public governance, cross-sectoral management, and relational capacity. After the seminar, a survey captured feedback on how participants perceived the overall benefit from the seminar, and the degree to which their expectations were met.

Of 22 responses collected, 100% rated the outcomes of the seminar as ‘good’ or ‘very good’. 59% and 36% felt that the meeting met their expectations to a ‘high degree’ or ‘very high degree’, while 5% were neutral. There was a feeling that there is a pressing need to improve the cross-sectoral cooperation in order to manage the complexity of people with inflammatory arthritis, and that some of the ideas presented would be useful as a tool to improve communication and collaboration – both internally, and with external partners.

The authors feel that the seminar was successful in addressing the need to improve coherence across sectors. This is the first step in a continuous process, and future efforts will involve patients and other stakeholders from all parts of the healthcare system to improve the cross-sectoral cooperation.

Source

Fabricius Petersen B, et al. Improving cross-sectoral care for patients with inflammatory arthritis: results from a first seminar with cross-sectoral involvement. Presented at EULAR 2024; OP0318-PARE.

Ann Rheum Dis 2024; DOI: 10.1136/annrheumdis-2024-eular.5801.

References

1. Geenen R, et al. EULAR recommendations for the health professional’s approach to pain management in inflammatory arthritis and osteoarthritis. Ann Rheum Dis 2018;77:797–807.

About EULAR

EULAR is the European umbrella organisation representing scientific societies, health professional associations and organisations for people with rheumatic and musculoskeletal diseases (RMDs). EULAR aims to reduce the impact of RMDs on individuals and society, as well as improve RMD treatments, prevention, and rehabilitation. To this end, EULAR fosters excellence in rheumatology education and research, promotes the translation of research advances into daily care, and advocates for the recognition of the needs of those living with RMDs by EU institutions.

Contact

EULAR Communications, communications@eular.org

Notes to Editors

EULAR Recommendations

EULAR School of Rheumatology

EULAR Press Releases

END

ELSE PRESS RELEASES FROM THIS DATE:

Protection against disease and treatment toxicity

2024-06-14

Autologous hematopoietic stem cell transplantation (aHSCT) for SSc has been proven the most effective treatment strategy with regard to overall and event free survival in selected patients.2 But a key limitation is its toxicity, and new treatment options are needed. Two abstracts presented at the 2024 EULAR congress in Vienna focused on novel approaches. Jörg Henes presented on behalf of the AST MOMA investigators. This prospective, open-label, study evaluated the feasibility of aHSCT in patients with impaired lung or heart function, and also ...

Does BMO induced by mechanical stress progress to structural lesions?

2024-06-14

BMO in the sacroiliac joint on MRI is present in up to 84% of people with non-radiographic axSpA – but it is also often seen in a non-inflammatory setting, such as in women after childbirth.1,2 As back pain is common after childbirth, differential diagnosis with axSpA is an important issue in clinical practice.1 In axSpA, active inflammatory lesions are likely to progress to structural lesions over time – particularly fat lesions and erosions. But it is not known whether the same is true for BMO induced by mechanical stress. In June 2024, EULAR – The European Alliance of Associations for Rheumatology – held its annual congress ...

Is fish intake linked to JIA?

2024-06-14

In 2019, a Swedish prospective birth cohort study of over 15,000 children showed that consuming fish at least once a week during pregnancy and during the first year of life was associated with up to a 5-fold increased risk of JIA, compared to those with fish consumption less than once a week. This increased risk was primarily attributed to elevated exposure to heavy metals.1 Now, new research shared at the 2024 congress of EULAR – The European Alliance of Associations for Rheumatology – is investigating ...

Unpicking the complexity of systemic sclerosis

2024-06-14

SSc is a connective tissue disease with variable clinical presentation. It may affect the skin, blood vessels, heart, lungs, kidneys, gastrointestinal tract, and musculoskeletal system – and this complexity and diversity makes it challenging to treat.2 This clinical heterogeneity in SSc may be partially explained by SSc-specific antibodies, but a better understanding of additional risk factors and patient stratification is still needed. Three abstracts shared at the 2024 EULAR congress present a selection of new clinical research to enrich knowledge ...

Group tests novel therapeutic strategy to minimize progression of Duchenne muscular dystrophy

2024-06-14

In an animal model of Duchenne muscular dystrophy, Brazilian researchers tested a therapy that combines photobiomodulation using laser light or light-emitting diodes (LEDs) with idebenone, an antioxidant compound investigated for application in neurodegenerative diseases. As reported in an article published in the journal PLOS ONE, the strategy prevented muscle degeneration and improved regenerative capacity in the muscle fibers affected by the disease. Duchenne muscular dystrophy is the most common and most severe form of childhood muscular dystrophy and most often ...

NMDP and CIBMTR share new, promising stem cell transplantation trial data using mismatched, unrelated donors at the 2024 EHA Congress

2024-06-14

MINNEAPOLIS, June 14, 2024 — NMDPSM, a global nonprofit leader in cell therapy, and the CIBMTR® (Center for International Blood and Marrow Transplant Research®) announced interim results from the ACCESS trial as an oral abstract during the European Hematology Association (EHA) Annual Meeting in Madrid, Spain. The study demonstrated that adults with hematologic malignancies who received peripheral blood stem cell (PBSC) transplant from HLA-mismatched unrelated donors (MMUD) followed by post-transplant cyclophosphamide (PTCy) graft-versus-host-disease (GvHD) prophylaxis exhibited a 79% overall survival (OS), the primary ...

Global trial confirms benefit of antacids on bleeding prevention for ventilated patients

2024-06-14

Hamilton, ON (June 14, 2024) – A widely available drug helps prevent upper gastrointestinal bleeding in critically ill adults on a breathing machine, according to the results of a global study and meta-analysis led by researchers at McMaster University. The research, published on June 14, 2024 in The New England Journal of Medicine and NEJM Evidence, investigated the effect of the gastric acid suppressant pantoprazole, which is primarily used to treat heartburn caused by gastroesophageal reflux disease (GERD). Patients ...

Tea crop saviors: Genomic insights into the tea grey geometrid's survival strategy

2024-06-14

In a breakthrough that could redefine tea crop protection, a new study has shed light on the genetic makeup of the tea grey geometrid, Ectropis grisescens. Through the re-sequencing of 43 genomes, scientists have mapped out the pest's population structure and its remarkable adaptation to tea crops, offering new avenues for managing this agricultural adversary. Amidst the lush tea plantations, a microscopic menace looms—the tea grey geometrid, a pest that can decimate tea yields with its insatiable appetite. The economic and qualitative havoc wreaked by this insect has prompted an urgent call for innovative pest control solutions. However, the genomic secrets ...

Cervical cancer screening rates among rural and urban females

2024-06-14

About The Study: This repeated cross-sectional study found that past-year Papanicolaou testing rates were lower in 2022 than 2019, pointing to a need to increase access to screenings to prevent an uptick in cervical cancer incidence. Rural-vs-urban differences in 2022 indicate a need to specifically target rural females. Corresponding Author: To contact the corresponding author, Tyrone F. Borders, Ph.D., email ty.borders@uky.edu. To access the embargoed study: Visit our For The Media website at this link https://media.jamanetwork.com/ (doi:10.1001/jamanetworkopen.2024.17094) Editor’s ...

Tiny New Zealand bird delivers a lesson in birdsong evolution

2024-06-14

Parrots, songbirds, and hummingbirds can learn to make new sounds. No-one knew, but New Zealand’s smallest bird, the rifleman or titipounamu, may have a rudimentary version of the same talent. University of Auckland research into the bird is part of a rethinking of how and when vocal learning evolved in birds. Scientists traditionally assumed birds were split into two groups - those which can learn sounds (parrots, songbirds, and hummingbirds) and those which can’t - but the study published in the scientific journal Communications Biology ...

LAST 30 PRESS RELEASES:

A map for single-atom catalysts

What about tritiated water release from Fukushima? Ocean model simulations provide an objective scientific knowledge on the long-term tritium distribution