(Press-News.org) Person-centered care focuses on treating patients as individuals with unique needs and involving them actively in their care decisions. The Person-Centered Primary Care Measure (PCPCM) is a recently developed, patient-reported survey able to assess person-centeredness. The PCPCM has demonstrated strong validity and reliability. The goal of this study was to translate the original PCPCM survey into Dutch, adapt the survey for people with low literacy, and evaluate its structure, consistency, and accuracy.
Study Approach: The survey was translated into Dutch and then back to English to ensure accuracy. The Dutch version was then tested to make sure it worked well for Dutch-speaking primary care patients, particularly those with low literacy. To confirm that the Dutch version of the survey accurately measured person-centered care, researchers compared it with a relevant selection of questions from another established survey, the Quality of Care Through the Patient’s Eyes (QUOTE) questionnaire. To ensure the Dutch survey’s reliability and consistency in its results, researchers conducted this comparison in a cross-sectional study.
Main Results: A total of 205 patients from four general practices completed the survey. Analysis showed that the survey worked better with three factors: comprehensiveness of care, personal relationship, and contextual care. The survey was found to be reliable in measuring person-centered care. It also showed a strong agreement with the QUOTE survey, indicating it accurately measured person-centered care.
Why It Matters: Validated outcome measures of important constructs such as patient centered care are important for future high quality research relevant to family medicine. Careful validation of translated tools allows for valid international comparisons.
Dutch Translation and Psychometric Evaluation of the Person-Centered Primary Care Measure
Peter Lucassen, MD, PhD, et al
Department of Primary and Community Care, Radboud Institute for Health Services, Radboud University Medical Center, Nijmegen, the Netherlands
PRE-EMBARGO LINK (Link expires at 5 p.m. July 22nd, 2024)
PERMANENT LINK
END
Dutch version of the person-centered primary care measure survey demonstrates sufficient validity and sufficient reliability for use in Dutch primary care practices
2024-07-22
ELSE PRESS RELEASES FROM THIS DATE:
Sexual and gender minority adults avoid necessary care due to identity discordance with clinicians and experiences of discrimination
2024-07-22
Background and Goal: Identity discordance between patients and clinicians is associated with worse self-rated patient experience and less receipt of necessary care. Most prior studies have focused on racial discordance. However, whether these phenomena also apply to sexual and gender minority adults is currently unknown. This study evaluated how prevalent avoidance due to patient-clinician identity discordance is and its potential association with health care discrimination among sexual and gender minority ...
Pandemic lockdown exacerbated ongoing declines in continuity of care within English general practices
2024-07-22
Background and Goal: Longitudinal continuity of care is the repeated contact between an individual and the same general practitioner (GP). This type of continuity of care is widely regarded as a cornerstone of primary care. Higher levels of longitudinal continuity of care are associated with better health outcomes, greater patient satisfaction, and more cost-effective use of health care resources. This study aimed to describe more recent variations between practices in the slopes of longitudinal continuity of care levels across the COVID-19 pandemic. The study also set out to determine if practice-related ...
July/August Annals of Family Medicine Tip Sheet
2024-07-22
Original Research
Structural Racism and Inconsistent Hospital Policies Result in Health Care Professionals Disproportionately Testing Black Newborns for Prenatal Drug Exposure
Background and Goal: Black birthing parents and their newborns disproportionately experience newborn drug testing for prenatal substance exposure by health care professionals. This practice contributes to Child Protective Services reporting, family separation, and termination of parental rights. This qualitative study, conducted at the University of Michigan in Ann Arbor, MI, explored knowledge, attitudes, and experiences ...
Teens benefit from a new primary care virtual driving assessment model
2024-07-22
Integrating driving support into a primary care setting can address a leading cause of family stress as well as teen adolescent morbidity and mortality. Motor vehicle crashes are a leading cause of death for adolescents, and a leading cause of crashes is driver error. To address this, researchers at the Children’s Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania implemented a 15-minute self-administered virtual driving assessment test in 19 primary care practices. 3,037 adolescents 15 years and older completed the virtual driving ...
Implementing diabetic retinopathy screening using in-clinic retinal photographs and automated software analysis increases screening rates for diabetic retinopathy among low-income minority patients
2024-07-22
One-third of diabetic adults in the U.S. do not receive annual eye exams. Additionally, lack of pupillary dilation before exams is associated with ungradable, or insufficient exams. In September 2022, the OhioHealth Grant Medical Center Family Medicine practice implemented on-site diabetic retinopathy screening using digital fundus photography and automated retinal imaging without dilation. The practice later introduced eye dilation for specific patients.
By identifying patients needing screening before appointments and using electronic health record reminders, the clinic increased the rate of interpretable exams from 20% in November 2022 to 35% in May 2023. That same month, the ...
Structural racism and inconsistent hospital policies result in health care professionals disproportionately testing black newborns for prenatal drug exposure
2024-07-22
Background and Goal: Black birthing parents and their newborns disproportionately experience newborn drug testing for prenatal substance exposure by health care professionals. This practice contributes to Child Protective Services reporting, family separation, and termination of parental rights. This qualitative study, conducted at the University of Michigan in Ann Arbor, MI, explored knowledge, attitudes, and experiences of health care professionals and Child Protective Services professionals regarding the influence of structural ...
Study examines the impact of social connections and professional networks of NAPCRG members in driving scientific success
2024-07-22
Background and Goal: This study marks the 50th anniversary of the North American Primary Care Research Group (NAPCRG)—the premiere primary care research organization, particularly in family medicine—by examining social connections among members.
Study Approach: Researchers used social network analysis to characterize individual members and the relational structure among NAPCRG community members.
The study invited 5,905 current and past NAPCRG members and participants. The survey, based on the validated Program to Analyze, Record, and Track Networks to Enhance Relationships ...
Media Tip Sheet: Fire Ecology at ESA2024
2024-07-22
Experts in fire ecology will converge at the Ecological Society of America’s upcoming Annual Meeting in Long Beach, Calif., Aug. 4–9, presenting the latest research on the causes and consequences of wildland fire in dozens of talks and posters.
The growing threat of wildfire makes understanding the past, present and future of fire regimes essential. Fire ecology addresses crucial questions such as how different species and ecosystems respond to burns, which habitats are most vulnerable and how forests recover—or fail to recover—after ...
Researchers enhance tool to better predict where and when wildfires will occur
2024-07-22
CORVALLIS, Ore. – A newly enhanced database is expected to help wildfire managers and scientists better predict where and when wildfires may occur by incorporating hundreds of additional factors that impact the ignition and spread of fire.
“There is a tremendous amount of interest in what enables wildfire ignitions and what can be done to prevent them,” said Erica Fleishman, an Oregon State University professor. “This database increases the ability to access relevant information and contribute to wildfire ...
A new drug target identified for diseases associated with leukemia-causing virus
2024-07-22
HERSHEY, Pa. — A team of researchers from Penn State College of Medicine found a new target for treating diseases associated with human T-cell leukemia virus type 1 (HTLV-1). They determined that blocking a class of enzymes called kinases, which regulates cellular functions, leads to cell death caused by the degradation of Tax, a protein essential for viral gene expression, viral transmission and survival of cells infected by HTLV-1. The team published the findings in Nature Communications.
HTLV-1 is a retrovirus — a type of virus that hijacks a cell by inserting ...