Thirty-three centers join new Bronchiectasis and NTM Care Center Network
The CCN aims to facilitate access to specialized care and support for the hundreds of thousands of people with bronchiectasis and nontuberculous mycobacterial (NTM) lung disease.
“As the prevalence of bronchiectasis and NTM lung disease grows, it is even more important for us to create this Care Center Network to improve access to high-quality, specialty care and resources patients need,” said Doreen Addrizzo-Harris, M.D., Chair of the CCN Steering Committee. “The CCN’s innovative, nationwide network will help us achieve our goals of improving care and quality of life for those with these conditions, as well as advancing toward a cure.”
Centers accepted into the CCN receive a designation of either a Bronchiectasis and NTM Care Center or a Bronchiectasis and NTM Clinical Associate Center, based on institutional resources and infrastructure. The requirements are established by the CCN’s Steering Committee, comprised of leading experts in the field.
The new Bronchiectasis and NTM Care Center sites are:
Cleveland Clinic Florida, Weston, Fla. Columbia University Irving Medical Center, New York Emory University Center for Bronchiectasis and Nontuberculous Mycobacterial Lung Disease Care, Atlanta Georgetown University Medical Center/MedStar Georgetown University Hospital Center for Bronchiectasis and NTM Disease, Washington Johns Hopkins Center for Nontuberculous Mycobacteria and Bronchiectasis, Baltimore LSU Health New Orleans, New Orleans Massachusetts General Hospital, Boston Mayo Clinic, Rochester, Minn. Medical University of South Carolina, Charleston, S.C. National Jewish Health, Denver Northwell Health Bronchiectasis and NTM Care Center at Long Island Jewish Medical Center, New Hyde Park, New York Northwestern University, Chicago NYU Langone Health Bronchiectasis and NTM Program, New York Oregon Health & Science University, Portland, Ore. Perelman School of Medicine at the University of Pennsylvania, Philadelphia Stanford University, Stanford, Calif. University of Alabama at Birmingham, Birmingham, Ala. University of California, San Francisco University of Kansas Medical Center, Kansas City, Kan. University of Michigan Health, Ann Arbor, Mich. University of Nebraska Medical Center, Omaha, Neb. University of North Carolina Bronchiectasis/NTM Care and Research Center, Chapel Hill, N.C. The University of Texas Health Science Center at Tyler, Tyler, Texas The University of Texas Health Science Center at San Antonio, San Antonio UVA Health, Charlottesville, Va. Vanderbilt University Medical Center, Nashville, Tenn. Washington University School of Medicine/Barnes-Jewish Hospital, St. Louis The new Bronchiectasis and NTM Clinical Associate Center sites are:
Cleveland Clinic Foundation, Cleveland Norton Thoracic Institute at St. Joseph’s Hospital & Medical Center, Phoenix NYC Health + Hospitals/Bellevue, New York UC San Diego Health, San Diego University of Miami Health System, Miami University of Rochester Medical Center, Rochester, N.Y. The network will span 150 medical centers in diverse geographical locations nationwide over the next three years. The Bronchiectasis and NTM Care Center Network is generously supported by Insmed Incorporated as a Founding Sponsor and Boehringer Ingelheim.
For more information about the Bronchiectasis and NTM Care Center Network, visit www.bronchandntm.org.
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About Bronchiectasis and NTM Lung Disease
Bronchiectasis is a chronic lung disease characterized by enlarged airways that are thickened and/or scarred. These permanently widened airways lead to a buildup of mucus and impaired clearance of bacteria from the lungs. Between 340,000 and 522,000 adults are receiving treatment in the U.S.
Nontuberculous mycobacterial (NTM) lung disease is a chronic respiratory condition caused by certain types of mycobacteria commonly found in the environment, such as in soil and water. NTM lung disease predominantly affects individuals with compromised immune systems or pre-existing lung conditions, such as bronchiectasis and chronic obstructive pulmonary disease (COPD). NTM lung disease affects tens of thousands of individuals in the U.S. with rates of infection on the rise.
About the Bronchiectasis and NTM Association
The Bronchiectasis and NTM Association is a nonprofit organization whose mission is to improve the lives of people with bronchiectasis, nontuberculous mycobacterial lung (NTM) disease, or both conditions. The Association accomplishes this by providing education, supporting advocacy, furthering research, and advancing high-quality, specialized care. For more information, visit www.bronchandntm.org.
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