(Press-News.org) East Hanover, NJ – July 26, 2024 – Children with special health care needs (CSHCN) often face significant disruptions in their education due to extended hospitalizations. A recent study published online in Disability and Rehabilitation on July 1, 2024, by a multidisciplinary team of Kessler Foundation and Children Specialized Hospital researchers, highlights critical areas needing attention to ensure smoother school re-entries for CSHCN, ensuring they receive the necessary educational support post-hospitalization.
Involving parents, former patients, and rehabilitation professionals, the study underscores the need for better coordination and communication to facilitate seamless transitions back to school for CSHCN. Titled Experiences of patients, parents, and healthcare professionals in the process of transitioning from hospital to community after inpatient pediatric rehabilitation among children with special health care needs (https://doi.org/10.1080/09638288.2024.2362951), the article offers insights into the challenges and solutions for improving school re-entry for CSHCN.
Foundation authors are Yu-Lun Chen, PhD, OTR/L; Stephanie Jimenez; Alexa Bartalotta; John O’Neill, PhD; and Amanda L. Botticello, PhD, MPH. Claire M. Marchetta, MPH, is from Children’s Specialized Hospital.
Semi-structured focus groups were conducted with parents (n = 12), former patients (n = 20), and rehabilitation professionals (n = 8). “Through a detailed analysis of recurring themes, we identified three essential points to help achieve the best outcomes. However, these steps were not always effectively implemented to achieve the desired results,” said lead author Dr. Chen, research scientist, Center for Outcomes and Assessment Research at the Foundation.
“Inpatient educational support such as instruction and schoolwork helped reduce the learning loss during hospitalization. However, these supports were sometimes complicated by lags in school approvals and challenges in coordination between systems,” said Dr. Chen.
“Transition planning involved establishing necessary services to support CSHCN’s educational and healthcare needs at school re-entry, though families reported limited information and guidance as key barriers,” she explained. Providing clear and accessible information to families about transition processes is particularly crucial for those dealing with newly acquired health conditions, though families highlighted the lack of information and guidance as significant barriers to effective transition planning.
“And finally, continued support after discharge was essential, with many participants recommending reassessment and adjustment of transition plans to account for evolving developmental and educational needs. However, these supports were sometimes hindered by delays in school approvals and coordination challenges between healthcare and educational systems,” concluded Dr. Chen.
The study stressed the urgent need to improve communication between clinicians and educators, provide comprehensive information for families, and ensure long-term follow-up on the changing educational needs of CSHCN post-rehabilitation.
Funding: National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).
About Kessler Foundation
Kessler Foundation, a major nonprofit organization in the field of disability, is a global leader in rehabilitation research. Our scientists seek to improve cognition, mobility, and long-term outcomes, including employment, for adults and children with neurological and developmental disabilities of the brain and spinal cord including traumatic brain injury, spinal cord injury, stroke, multiple sclerosis, and autism. Kessler Foundation also leads the nation in funding innovative programs that expand opportunities for employment for people with disabilities. For more information, visit KesslerFoundation.org.
Press Contact at Kessler Foundation:
Deborah Hauss, DHauss@kesslerfoundation.org;
Stay Connected with Kessler Foundation
X (formerly known as Twitter) | Facebook | YouTube | Instagram | SoundCloud
END
Supporting school re-entry of children with special health care needs post extended hospitalizations
Study underscores the need for better coordination and communication to facilitate seamless transitions
2024-07-26
[Attachments] See images for this press release:
ELSE PRESS RELEASES FROM THIS DATE:
Have a seat, doctor: Study suggests eye-level connection makes a difference in hospitals
2024-07-26
Doctors and others who take care of hospitalized patients may want to sit down for this piece of news.
A new study suggests that getting at a patient’s eye level when talking with them about their diagnosis or care can really make a difference. Sitting or crouching at a hospitalized patient’s bedside was associated with more trust, satisfaction and even better clinical outcomes than standing, according to the new review of evidence.
The study’s authors, from the University of Michigan and VA Ann Arbor Healthcare System, note that most of the studies on this topic varied with their interventions and outcomes, and were found to have high risk of bias. Their ...
BRCA1/2: Why men should be screened for the ‘breast cancer gene’
2024-07-26
More and more studies show that men face risks of cancer from BRCA1 and BRCA2 genetic mutations that are most often associated with breast and ovarian cancers in women.
According to a July 25 JAMA Oncology review article by experts at Fred Hutch Cancer Center and University of Washington, newly developed national screening guidelines offer hope for identifying the cancer risk of BRCA mutations in men through genetic testing and tailored cancer screening.
“Not enough men are getting genetic testing to see if they carry a BRCA1 or BRCA2 gene ...
Researchers develop state-of-the-art device to make artificial intelligence more energy efficient
2024-07-26
MINNEAPOLIS / ST. PAUL (07/25/2024) — Engineering researchers at the University of Minnesota Twin Cities have demonstrated a state-of-the-art hardware device that could reduce energy consumption for artificial intelligent (AI) computing applications by a factor of at least 1,000.
The research is published in npj Unconventional Computing, a peer-reviewed scientific journal published by Nature. The researchers have multiple patents on the technology used in the device.
With the growing demand of AI applications, researchers have been looking ...
The Texas Heart Institute provides BiVACOR® Total Artificial Heart Patient update
2024-07-26
Houston, Texas, July 26, 2024 – The Texas Heart Institute (THI), a globally renowned cardiovascular health center, and BiVACOR®, a leading clinical-stage medical device company, are pleased to provide an update on the condition of the first patient to receive the BiVACOR Total Artificial Heart (TAH) implant on July 9, as part of the U.S. Food and Drug Administration (FDA) Early Feasibility Study (EFS). On July 17, eight days following the BiVACOR TAH implant, a donor heart became available and was transplanted into the ...
The ancestor of all modern birds probably had iridescent feathers
2024-07-26
The color palette of the birds you see out your window depend on where you live. If you’re far from the Equator, most birds tend to have drab colors, but the closer you are to the tropics, you’ll probably see more and more colorful feathers. Scientists have long been puzzled about why there are more brilliantly-colored birds in the tropics than in other places, and they’ve also wondered how those brightly-colored birds got there in the first place: that is, if those colorful feathers evolved in the tropics, or if tropical birds have colorful ancestors that came to the region from somewhere else. In a new study published ...
A rare form of ice at the center of a cool new discovery about how water droplets freeze
2024-07-26
Tokyo, Japan – Ice is far more complicated than most of us realize, with over 20 different varieties known to science, forming under various combinations of pressure and temperature. The kind we use to chill our drinks is known as ice I, and it’s one of the few forms of ice that exist naturally on Earth. Researchers from Japan have recently discovered another type of ice: ice 0, an unusual form of ice that can seed the formation of ice crystals in supercooled water.
The formation of ice near the surface ...
Embargoed - Researchers devise novel solution to preventing relapse after CAR T-cell therapy
2024-07-26
Lack of persistence of CAR T cells is major limiting step in CAR T-cell therapy
Made by fusing an immune-stimulatory molecule to a protein from cancer cells, the therapy selectively targets CAR T cells and enhances their functionality and persistence in the body, extending their attack on cancer.
The therapy, called CAR-Enhancer (CAR-E), also causes CAR T cells to retain a memory of the cancer, allowing them to mount another attack if cancer recurs
BOSTON – Even as they have revolutionized the treatment of certain forms of cancer, CAR T-cell therapies ...
Lampreys possess a ‘jaw-dropping’ evolutionary origin
2024-07-26
EVANSTON, Ill. --- One of just two vertebrates without a jaw, sea lampreys that are wreaking havoc in Midwestern fisheries are simultaneously helping scientists understand the origins of two important stem cells that drove the evolution of vertebrates.
Northwestern University biologists have pinpointed when the gene network that regulates these stem cells may have evolved and gained insights into what might be responsible for lampreys’ missing mandibles.
The two cell types — pluripotent blastula cells (or embryonic stem cells) and neural crest cells — are both “pluripotent,” ...
"Just like your mother?" Maternal and paternal X-chromosomes show skewed distribution in different organs and tissues.
2024-07-26
A new study published in Nature Genetics by the Lymphoid Development Group at the MRC Laboratory of Medical Sciences has reveals that the contribution of cells expressing maternal or paternal X chromosomes can be selectively skewed in different parts of the body. The study leverages human data from the 1000 Genomes Project combined with mouse models of human X chromosome-linked DNA sequence variation to advance our fundamental understanding of development in biologically female individuals who have two X chromosomes.
Until now, it was thought that the usage of maternal and paternal X-chromosomes was similar throughout the body. The ...
Conflicting health advice from agencies drives confusion, study finds, but doctors remain most trusted
2024-07-26
Distrust of health experts and credulity towards misinformation can kill. For example, during the Covid-19 crisis, high-profile health experts received death threats while misinformation went viral on social media. And already long before the pandemic, easily preventable but potentially serious diseases had been making a comeback around the world due to vaccine hesitancy – often powered by conspiracy theories.
But what feeds this lack in trust in reliable sources of health information? Can it perhaps be mitigated? Those are the subjects of a new study in Frontiers in Medicine by researchers from the US.
“Here we show that individuals who ...
LAST 30 PRESS RELEASES:
FOR IMMEDIATE RELEASE: Mount Sinai experts present research at SLEEP 2025
Medigap protection and plan switching among Medicare advantage enrollees with cancer
Bubbles are key to new surface coating method for lightweight magnesium alloys
Carbon stable isotope values yield different dietary associations with added sugars in children compared to adults
Scientists discover 230 new giant viruses that shape ocean life and health
Hurricanes create powerful changes deep in the ocean, study reveals
Genetic link found between iron deficiency and Crohn’s disease
Biologists target lifecycle of deadly parasite
nTIDE June 2025 Jobs Report: Employment of people with disabilities holds steady in the face of uncertainty
Throughput computing enables astronomers to use AI to decode iconic black holes
Why some kids respond better to myopia lenses? Genes might hold the answer
Kelp forest collapse alters food web and energy dynamics in the Gulf of Maine
Improving T cell responses to vaccines
Nurses speak out: fixing care for disadvantaged patients
Fecal transplants: Promising treatment or potential health risk?
US workers’ self-reported mental health outcomes by industry and occupation
Support for care economy policies by political affiliation and caregiving responsibilities
Mailed self-collection HPV tests boost cervical cancer screening rates
AMS announces 1,000 broadcast meteorologists certified
Many Americans unaware high blood pressure usually has no noticeable symptoms
IEEE study describes polymer waveguides for reliable, high-capacity optical communication
Motor protein myosin XI is crucial for active boron uptake in plants
Ultra-selective aptamers give viruses a taste of their own medicine
How the brain distinguishes between ambiguous hypotheses
New AI reimagines infectious disease forecasting
Scientific community urges greater action against the silent rise of liver diseases
Tiny but mighty: sophisticated next-gen transistors hold great promise
World's first practical surface-emitting laser for optical fiber communications developed: advancing miniaturization, energy efficiency, and cost reduction of light sources
Statins may reduce risk of death by 39% for patients with life-threatening sepsis
Paradigm shift: Chinese scientists transform "dispensable" spleen into universal regenerative hub
[Press-News.org] Supporting school re-entry of children with special health care needs post extended hospitalizationsStudy underscores the need for better coordination and communication to facilitate seamless transitions