(Press-News.org) The European Alliance of Associations for Rheumatology (EULAR) is proud to announce the launch of RheumaFacts, an innovative and unique resource of facts and figures related to rheumatic and musculoskeletal diseases (RMDs) across Europe. Strategically developed to support EULAR’s mission of reducing the impact of RMDs on individuals and society, RheumaFacts will serve as a powerful tool to provide healthcare professionals, researchers, policymakers, and patients with data-driven insights on the status of rheumatologic care across EULAR’s member countries.
Through periodical surveys among EULAR’s member organisations, country-specific information about national rheumatologic care, resources and expenditures will be retrieved. Complemented by global, socio-economic statistics from international organisations, RheumaFacts will provide, in one single platform, a unique resource about the reality of the impact of RMDs across Europe. “By joining forces with all of EULAR’s member countries, we will create a database of up-to-date RMD-related information. No other data repository of this kind is available across Europe, and it will be the go-to resource to understand the real burden of disease and identify unmet needs in the different healthcare systems across Europe”, said Dr Anna Molto, chair of the EULAR Research sub-committee of epidemiology and public health and lead of the project.
RheumaFacts is one of several new initiatives under the umbrella of the EULAR Research Centre that aims to facilitate collaborative basic, clinical, and epidemiological research by providing resources, infrastructure, services, and training for RMD researchers across Europe. The Centre’s recently launched, patient-filled Impact of RMDs Survey will be another important resource informing RheumaFacts with a unique patients’ perspective on rheumatologic care. “RheumaFacts will reveal not only trends and numbers, but much more importantly, healthcare gaps and inequalities among our member societies that we will aim to reduce”, said Professor Annamaria Iagnocco, EULAR President. “With RheumaFacts, we will enable patient organisations and policymakers to be better informed and to advocate more effectively for decent care of RMD patients across the EULAR countries.”
The data presented in RheumaFacts will be available to researchers and other groups such as funding agencies, decision-makers, and policymakers who can advance public health at a European level. EULAR encourages all its member organisations to participate in the data collection by sharing relevant information and insights about their national RMD care. For more information, please visit the RheumaFacts website.
About EULAR
EULAR is the European umbrella organisation representing scientific societies, health professional associations and organisations for people with rheumatic and musculoskeletal diseases (RMDs). EULAR aims to reduce the burden of RMDs on individuals and society and to improve the treatment, prevention and rehabilitation of RMDs. To this end, EULAR fosters excellence in education and research in the field of rheumatology. It promotes the translation of research advances into daily care and fights for the recognition of the needs of people with RMDs by the EU institutions through advocacy action.
Contact
EULAR Communications, communications@eular.org
Notes to Editors
EULAR Recommendations
EULAR School of Rheumatology
EULAR Press Releases
END
EULAR launches ‘RheumaFacts’, a unique and Pan-European data repository of rheumatic and musculoskeletal disease indicators
'RheumaFacts' draws a map of the socio-economic and healthcare realities in the field of rheumatology across Europe
2023-06-01
ELSE PRESS RELEASES FROM THIS DATE:
EULAR launches first European patient-filled survey about the impact of rheumatic and musculoskeletal diseases on individual’s lives
2023-06-01
The European Alliance of Associations for Rheumatology (EULAR) has announced the launch of the EULAR Impact of RMDs Survey, an online questionnaire targeted directly at RMD patients. The data collected through this survey will be an important resource for researchers, healthcare professionals, and patients alike, providing a comprehensive database of patient-reported outcomes on their healthcare situation, and how the illness affects their social and occupational lives. By collecting and analysing data from a large number of patients with RMDs on a recurring basis, the survey will provide valuable insights into the burden of disease and help improve the overall care for people living with ...
Rheumatic and musculoskeletal diseases (RMDs) often accelerate lethal comorbidities
2023-06-01
Rheumatic and musculoskeletal diseases (RMDs) include over 200 diseases that affect over 120 million Europeans of all ages. Aside from the significant direct impact RMDs have on patients, many of them also pose a further significant risk to the population by virtue of accelerating many comorbidities if the RMD is not treated appropriately. The most significant comorbidities of inflammatory RMDs include cardiovascular disease, lung disease, cancers, gastrointestinal disease, and mental health disorders.[1] Many of these comorbidities are prioritised by the EU as key non-communicable ...
Stand Up to Cancer announces $1.5 million commitment from Pancreatic Cancer North America to fund pancreatic cancer vaccine research
2023-06-01
LOS ANGELES – June 1, 2023 – Stand Up To Cancer® (SU2C) and Pancreatic Cancer North America (PCNA) today announced that PCNA will contribute $1.5 million to SU2C in support of critically needed research focused on pancreatic cancer, which has the highest mortality rate of all major cancers.
One of the projects supported by PCNA will include a correlative study that analyzes data from a previous Phase 1 clinical trial conducted by a Research Team funded through the SU2C Convergence program and led by researchers at Memorial ...
Rethink, rewrite, redefine—how biodegradable plastics are reshaping sustainability
2023-06-01
The University of California San Diego’s vision is to be a student-centered, research-focused, service-oriented public university. There are countless examples across campus of the ways these three pillars are upheld, but it is unique to find all three incorporated at once. Now a new book on algae-based biodegradable plastics showcases student research and the monumental potential it has to change consumerism on a global scale.
Statistics on the environmental damage of plastics are stark: in 2018, U.S. landfills received 27 million tons of plastic (U.S. Environmental Protection Agency); ...
ComboMATCH investigators are translating robust pre-clinical evidence for new anti-cancer drug combinations into a series of early-phase clinical trials
2023-06-01
Five leading cancer research organizations in the United States are jointly announcing the start of patient enrollment in Molecular Analysis for Combination Therapy Choice (ComboMATCH), a unique, precision medicine initiative to test new combinations of cancer drugs guided by tumor biology. The Alliance for Clinical Trials in Oncology, Children's Oncology Group, ECOG-ACRIN Cancer Research Group, NRG Oncology, and SWOG Cancer Research Network plan to conduct many early-phase treatment trials through this platform in collaboration with the National Cancer Institute (NCI) National Clinical Trials Network (NCTN). NCI is part of ...
Parkinson’s disease drug ropinirole safely slowed the progression of ALS for over 6 months in a clinical trial
2023-06-01
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, is a fatal motor neuron disease that causes people to gradually lose control of their muscles. There is no cure, and current treatments focus on reducing symptoms and providing supportive care. Reporting June 1 in the journal Cell Stem Cell, researchers from Japan show in an early clinical trial that the Parkinson’s disease drug ropinirole is safe to use in ALS patients and delayed disease progression by 27.9 weeks on average.
Some patients were more responsive to ropinirole treatment than others, and the researchers ...
The 'breath' between atoms — a new building block for quantum technology
2023-06-01
University of Washington researchers have discovered they can detect atomic "breathing," or the mechanical vibration between two layers of atoms, by observing the type of light those atoms emitted when stimulated by a laser. The sound of this atomic "breath" could help researchers encode and transmit quantum information.
The researchers also developed a device that could serve as a new type of building block for quantum technologies, which are widely anticipated to have many future applications in fields such as computing, ...
CHOP researchers use “deep sequencing” to identify several previously undescribed genetic variants in vascular anomalies
2023-06-01
Philadelphia, June 1, 2023 – Researchers from Children’s Hospital of Philadelphia (CHOP) recently discovered that extremely thorough “deep sequencing” of the genome in tissue samples and cell-free DNA of patients with potentially life-threatening vascular anomalies captured several genetic variants related to disease that were not captured with conventional genetic sequencing methods. More than 60% of patients saw an improvement in their condition after being placed on targeted therapies related to these newly found genetic variants. The findings were published today in the journal Nature Medicine.
Vascular ...
Quantifying mangroves’ value as a climate solution and economic engine
2023-06-01
A tiny Central American country is charting a path to slowing climate change, while boosting the economy and making communities safer. A new Stanford-led study quantifies the value of Belize’s coastal mangrove forests in terms of how much carbon they can hold, the value they can add to tourism and fisheries, and the protection they can provide against coastal storms and other risks. Importantly, the findings, published June 1 in Nature Ecology and Evolution, have already provided a basis for Belize’s commitment to protect or restore additional mangrove forests totaling an area about the size ...
Smart thermometer–based participatory surveillance to discern the role of children in household viral transmission during pandemic
2023-06-01
About The Study: In this study using smart thermometers to measure within-household transmission at a national scale, researchers discerned an important role for children in the spread of viral infection within households during the COVID-19 pandemic, heightened when schools were in session, supporting a role for school attendance in COVID-19 spread.
Authors: Kenneth D. Mandl, M.D., M.P.H., of Boston Children’s Hospital, is the corresponding author.
To access the embargoed study: Visit our For The Media website at this link https://media.jamanetwork.com/
(doi:10.1001/jamanetworkopen.2023.16190)
Editor’s ...
LAST 30 PRESS RELEASES:
Scientists unlock secrets behind flowering of the king of fruits
Texas A&M researchers illuminate the mysteries of icy ocean worlds
Prosthetic material could help reduce infections from intravenous catheters
Can the heart heal itself? New study says it can
Microscopic discovery in cancer cells could have a big impact
Rice researchers take ‘significant leap forward’ with quantum simulation of molecular electron transfer
Breakthrough new material brings affordable, sustainable future within grasp
How everyday activities inside your home can generate energy
Inequality weakens local governance and public satisfaction, study finds
Uncovering key molecular factors behind malaria’s deadliest strain
UC Davis researchers help decode the cause of aggressive breast cancer in women of color
Researchers discovered replication hubs for human norovirus
SNU researchers develop the world’s most sensitive flexible strain sensor
Tiny, wireless antennas use light to monitor cellular communication
Neutrality has played a pivotal, but under-examined, role in international relations, new research shows
Study reveals right whales live 130 years — or more
Researchers reveal how human eyelashes promote water drainage
Pollinators most vulnerable to rising global temperatures are flies, study shows
DFG to fund eight new research units
Modern AI systems have achieved Turing's vision, but not exactly how he hoped
Quantum walk computing unlocks new potential in quantum science and technology
Construction materials and household items are a part of a long-term carbon sink called the “technosphere”
First demonstration of quantum teleportation over busy Internet cables
Disparities and gaps in breast cancer screening for women ages 40 to 49
US tobacco 21 policies and potential mortality reductions by state
AI-driven approach reveals hidden hazards of chemical mixtures in rivers
Older age linked to increased complications after breast reconstruction
ESA and NASA satellites deliver first joint picture of Greenland Ice Sheet melting
Early detection model for pancreatic necrosis improves patient outcomes
Poor vascular health accelerates brain ageing
[Press-News.org] EULAR launches ‘RheumaFacts’, a unique and Pan-European data repository of rheumatic and musculoskeletal disease indicators'RheumaFacts' draws a map of the socio-economic and healthcare realities in the field of rheumatology across Europe